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100 years from now: comparing parental perspectives about supports for adults with autism in the USA and China

100 years from now: comparing parental perspectives about supports for adults with autism in the... Findings from a comparative qualitative study with parents in the USA and China increase the understanding of experiences of adults with autism in both countries.Design/methodology/approachSemi-Structured interviews were conducted with families in the USA and in China. In total, 18 families participated in the study – 7 in the USA, 11 in China.FindingsAnalysis of the comparative data led to the emergence of three overarching themes, expressing both similarities and differences in experiences: 1) transition to adult services plays out differently in the two nations, 2) parent advocacy and efforts in supporting and securing services for their children are strong in both countries but are also defined by the variability in access to services and 3) due to the scarcity of adult services in their country, Chinese parents express significantly more worries about their own aging and mortality as compared with USA parents.Research limitations/implicationsPractical implications and directions for future research are discussed.Originality/valueBy examining the experiences of families of adults with autism in the USA and China, the research reveals themes that would not be visible in a single-nation study. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Advances in Autism Emerald Publishing

100 years from now: comparing parental perspectives about supports for adults with autism in the USA and China

Baker, Diana; McCabe, Helen; Kelly, Mary; Jiang, Tian
Advances in Autism , Volume 6 (3): 14 – Jul 16, 2020
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Publisher
Emerald Publishing
Copyright
© Emerald Publishing Limited
ISSN
2056-3868
DOI
10.1108/aia-10-2019-0034
Publisher site
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Abstract

Findings from a comparative qualitative study with parents in the USA and China increase the understanding of experiences of adults with autism in both countries.Design/methodology/approachSemi-Structured interviews were conducted with families in the USA and in China. In total, 18 families participated in the study – 7 in the USA, 11 in China.FindingsAnalysis of the comparative data led to the emergence of three overarching themes, expressing both similarities and differences in experiences: 1) transition to adult services plays out differently in the two nations, 2) parent advocacy and efforts in supporting and securing services for their children are strong in both countries but are also defined by the variability in access to services and 3) due to the scarcity of adult services in their country, Chinese parents express significantly more worries about their own aging and mortality as compared with USA parents.Research limitations/implicationsPractical implications and directions for future research are discussed.Originality/valueBy examining the experiences of families of adults with autism in the USA and China, the research reveals themes that would not be visible in a single-nation study.

Journal

Advances in Autism – Emerald Publishing

Published: Jul 16, 2020

Keywords: Autism; Transition; Adulthood; Aging; China; Services; International; Adults; Quality of life

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