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Autism identification across ethnic groups: a narrative review

Autism identification across ethnic groups: a narrative review The purpose of the paper is to review autism identification across different ethnic groups. Diagnosis of autism may be missed or delayed in certain ethnic groups, leading to such groups being underserved relative to their needs. This can result in members of such groups being effectively denied essential avenues of support that can substantially improve the quality of life of autistic persons as well as those whom care for them.Design/methodology/approachA literature search for articles reporting autism identification across ethnic groups was undertaken. Data are compared, with a special focus on possible explanations for any inter-group variation.FindingsAutism identification appears to be generally lower in minority ethnic groups relative to the majority population. Individuals presenting with autism from minority groups appear to have more severe forms of the condition.Originality/valueThere are a multitude of potential explanations for inter-ethnicity variation in autism identification, including health care-related factors, broader environmental influences, cultural factors and possible biological differences. Implications for clinical practice and public health include a need to look at means of ensuring equitable access to relevant autism diagnostic and support services across ethnic groups. Further work is required to better understand the belief systems that operate within specific ethnic groups, how this may potentially impact upon autism identification and measures to address the concerns of such groups. http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Advances in Autism Emerald Publishing

Autism identification across ethnic groups: a narrative review

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Publisher
Emerald Publishing
Copyright
© Emerald Publishing Limited
ISSN
2056-3868
DOI
10.1108/aia-03-2020-0017
Publisher site
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Abstract

The purpose of the paper is to review autism identification across different ethnic groups. Diagnosis of autism may be missed or delayed in certain ethnic groups, leading to such groups being underserved relative to their needs. This can result in members of such groups being effectively denied essential avenues of support that can substantially improve the quality of life of autistic persons as well as those whom care for them.Design/methodology/approachA literature search for articles reporting autism identification across ethnic groups was undertaken. Data are compared, with a special focus on possible explanations for any inter-group variation.FindingsAutism identification appears to be generally lower in minority ethnic groups relative to the majority population. Individuals presenting with autism from minority groups appear to have more severe forms of the condition.Originality/valueThere are a multitude of potential explanations for inter-ethnicity variation in autism identification, including health care-related factors, broader environmental influences, cultural factors and possible biological differences. Implications for clinical practice and public health include a need to look at means of ensuring equitable access to relevant autism diagnostic and support services across ethnic groups. Further work is required to better understand the belief systems that operate within specific ethnic groups, how this may potentially impact upon autism identification and measures to address the concerns of such groups.

Journal

Advances in Autism – Emerald Publishing

Published: Aug 11, 2021

Keywords: Autism; Diversity; Ethnicity; Epidemiology; Pervasive developmental disorder

References

  • Mental health publications from the Arab world cited in PubMed, 1987-2002
    Afifi, M.
  • Negro, black, black African, African Caribbean, African American or what? Labelling African origin populations in the health arena in the 21st century
    Agyemang, C.; Bhopal, R.; Bruijnzeels, M.
  • Cross-national comparison of Middle Eastern university students: help-seeking behaviors, attitudes toward helping professionals, and cultural beliefs about mental health problems
    Al-Krenawi, A.; Graham, J.R.; Al-Bedah, E.A.; Kadri, H.M.; Sehwail, M.A.
  • Indigenous Australians with autism: a scoping review
    Bailey, B.; Arciuli, J.
  • The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians
    Baron-Cohen, S.; Wheelwright, S.; Skinner, R.; Martin, J.; Clubley, E.
  • Autism spectrum disorders and race, ethnicity, and nativity: a population-based study
    Becerra, T.A.; Von Ehrenstein, O.S.; Heck, J.E.; Olsen, J.; Arah, O.A.; Jeste, S.S.; Rodriguez, M.; Ritz, B.
  • Underdiagnosis and referral bias of autism in ethnic minorities
    Begeer, S.; El Bouk, S.; Boussaid, W.; Terwogt, M.M.; Koot, H.M.
  • Aspects of quality of life in adults diagnosed with autism in childhood: a population-based study
    Billstedt, E.; Gillberg, I.C.; Gillberg, C.
  • Design and operation of the national survey of children with special health care needs, 2005-2006
    Blumberg, S.J.; Welch, E.M.; Chowdhury, S.R.; Upchurch, H.L.; Parker, E.K.; Skalland, B.J.
  • Autism spectrum disorders in adults living in households throughout England: report from the adult psychiatric morbidity survey 2007
    Brugha, T.; Bankart, J.
  • Testing adults by questionnaire for social and communication disorders, including autism spectrum disorders, in an adult mental health service population
    Brugha, T.; Tyrer, F.; Leaver, A.; Lewis, S.; Seaton, S.; Morgan, Z.; Tromans, S.; Van Rensburg, K.
  • African American families on autism diagnosis and treatment: the influence of culture
    Burkett, K.; Morris, E.; Manning-Courtney, P.; Anthony, J.; Shambley-Ebron, D.
  • A cross-cultural study of autistic traits across India, Japan and the UK
    Carruthers, S.; Kinnaird, E.; Rudra, A.; Smith, P.; Allison, C.; Auyeng, B.; Chakrabarti, B.; Wakabayashi, A.; Baron-Cohen, S.; Bakolis, I.
  • National survey of children with special health care needs
  • Autism and Developmental Disabilities Monitoring (ADDM) network
  • Autism spectrum disorders in Hispanics and non-hispanics
    Chaidez, V.; Hansen, R.L.; Hertz-Picciotto, I.
  • The prevalence of autistic traits in a homeless population
    Churchard, A.; Ryder, M.; Greenhill, A.; Mandy, W.
  • Brief report: Texas school district autism prevalence in children from non-english-speaking homes
    Dickerson, A.S.; Dickerson, A.S.
  • Dementia caregiving in blacks: a contextual approach to research
    Dilworth-Anderson, P.; Anderson, N.B.; Light, E.; Niederehe, G.; Lebowitz, B.D.
  • Autism spectrum disorder among US children (2002-2010): socioeconomic, racial, and ethnic disparities
    Durkin, M.S.; Maenner, M.J.; Baio, J.; Christensen, D.; Daniels, J.; Fitzgerald, R.; Imm, P.; Lee, L.; Schieve, L.A.; Van Naarden Braun, K.
  • Intervention research to benefit people with autism: how old are the participants?
    Edwards, T.L.; Watkins, E.E.; Lotfizadeh, A.D.; Poling, A.
  • Maternal race – ethnicity, immigrant status, country of birth, and the odds of a child with autism
    Fairthorne, J.; De Klerk, N.; Leonard, H.M.; Schieve, L.A.; Yeargin-Allsop, M.
  • Writing narrative style literature reviews
    Ferrari, R.
  • Sociocultural perspective on autism intervention
    Fong, E.H.; Lee, H.; Fitzgerald, M.; Yip, J.
  • It was like walking without knowing where I was going’: a qualitative study of autism in a UK Somali Migrant Community
    Fox, F.; Aabe, N.; Turner, K.; Redwood, S.; Rai, D.
  • Autism and the African American community
    Gourdine, R.M.; Baffour, T.D.; Teasley, M.
  • Department of justice: births, deaths and marriages
  • Understanding the experiences and needs of South Asian families caring for a child with learning disabilities in the United Kingdom: an experiential – contextual framework
    Heer, K.; Rose, J.; Larkin, M.
  • Autism spectrum disorder (ASD) prevalence in Somali and non-Somali children
    Hewitt, A.; Hall-Lande, J.; Hamre, K.; Esler, A.N.; Punyko, J.; Reichle, J.; Gulaid, A.A.
  • Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system
    Imm, P.; White, T.; Durkin, M.S.
  • The relationship between ethnicity and age of first concern in toddlers with autism spectrum disorder
    Jang, J.; Matson, J.L.; Cervantes, P.E.; Konst, M.J.
  • Age at Autism Spectrum Disorder (ASD) diagnosis by race, ethnicity and primary household language among children with special health care needs, United States, 2009–2010
    Jo, H.; Schieve, L.A.; Rice, C.E.; Yeargin-Allsopp, M.; Tian, L.H.; Blumberg, S.J.; Kogan, M.D.; Boyle, C.A.
  • Autism, ethnicity and maternal immigration
    Keen, D.; Reid, F.; Arnone, D.
  • Sociodemographic barriers to early detection of autism: screening and evaluation using the M-CHAT, M-CHAT-R, and follow-up
    Khowaja, M.K.; Hazzard, A.P.; Robins, D.L.
  • Racial and ethnic disparities in diagnosis of chronic medical conditions in the USA
    Kim, E.J.; Kim, T.; Conigliaro, J.; Liebschutz, J.M.; Paasche-Orlow, M.K.; Hanchate, A.D.
  • A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006
    Kogan, M.D.; Strickland, B.B.; Blumberg, S.J.; Singh, G.K.; Perrin, J.M.; Van Dyck, P.C.
  • Autism and intellectual disability are differentially related to sociodemographic background at birth
    Leonard, H.; Glasson, E.; Nassar, N.; Whitehouse, A.; Bebbington, A.; Bourke, J.; Jacoby, P.; Dixon, G.; Malacova, E.; Bower, C.
  • Autism prevalence and severity in Bedouin-Arab and Jewish communities in Southern Israel
    Levaot, Y.; Meiri, G.; Dinstein, I.; Menashe, I.; Shoham-Vardi, I.
  • What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis
    Loomes, R.; Hull, L.; Mandy, W.P.L.
  • Parents taking action: reducing disparities through a culturally informed intervention for Latinx parents of children with autism
    Lopez, K.; Magana, S.; Morales, M.; Iland, E.
  • Autism diagnostic interview-revised: a revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders
    Lord, C.; Rutter, M.; Le Couteur, A.
  • The autism diagnostic observation schedule – generic: a standard measure of social and communication deficits associated with the spectrum of autism
    Lord, C.; Risi, S.; Lambrecht, L.; Cook, E.H.; Leventhal, B.L.; Dilavore, P.C.; Pickles, A.; Rutter, M.
  • Mental health and wellbeing in England: adult psychiatric morbidity survey 2014
    McManus, S.; Brugha, T.
  • Clinical characteristics of autism spectrum disorder in Israel: impact of ethnic and social diversities
    Mahajnah, M.; Sharkia, R.; Shalabe, H.; Terkel-Dawer, R.; Akawi, A.; Zelnik, N.
  • Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder
    Mandell, D.S.; Ittenbach, R.F.; Levy, S.E.; Pinto-Martin, J.A.
  • Race differences in the age at diagnosis among medicaid-eligible children with autism
    Mandell, D.S.; Listerud, J.; Levy, S.E.; Pinto-Martin, J.A.
  • Racial/ethnic disparities in the identification of children with autism spectrum disorders
    Mandell, D.S.; Wiggins, L.D.; Carpenter, L.A.; Daniels, J.; Diguiseppi, C.; Durkin, M.S.; Giarelli, E.; Morrier, M.J.; Nicholas, J.S.; Pinto-Martin, J.A.
  • Unequal treatment: confronting racial and ethnic disparities in health care
    Nelson, A.R.
  • Marketing to ethnic minorities in Britain
    Nwankwo, S.; Lindridge, A.
  • Ethnicity
  • Design and estimation for the national health interview survey, 2006-2015
    Parsons, V.L.; Moriarity, C.L.; Jonas, K.; Moore, T.F.; Davis, K.E.; Tompkins, L.
  • Practice patterns and determinants of wait time for autism spectrum disorder diagnosis in Canada
    Penner, M.; Anagnostou, E.; Ungar, W.J.
  • Cultural basis of social ‘deficits’ in autism spectrum disorders
    Perepa, P.
  • IDEA (Intellectual Disability Exploring Answers): a population-based database for intellectual disability in Western Australia
    Petterson, B.; Leonard, H.; Bourke, J.; Sanders, R.; Chalmers, R.; Jacoby, P.; Bower, C.
  • African American and white mothers of adults with chronic disabilities: caregiving burden and satisfaction
    Pruchno, R.; Patrick, J.H.; Burant, C.J.
  • Parental socioeconomic status and risk of offspring autism spectrum disorders in a Swedish population-based study
    Rai, D.; Lewis, G.; Lundberg, M.; Araya, R.; Scensson, A.; Dalman, C.; Carpenter, P.; Magnusson, C.
  • Cultural effects on the diagnosis of autism spectrum disorder among Latinos
    Ratto, A.B.; Reznick, J.S.; Turner-Brown, L.
  • Combining information from multiple sources in the diagnosis of autism spectrum disorders
    Risi, S.; Lord, C.; Gotham, K.; Corsello, C.; Chrysler, C.; Szatmari, P.; Cook, E.H.; Leventhal, B.L.; Pickles, A.
  • Genetic research in autism spectrum disorders
    Robinson, E.B.; Neale, B.M.; Hyman, S.E.
  • Characters with autism spectrum disorder in fiction: where are the women and girls?
    Tharian, P.R.; Henderson, S.; Wathanasin, N.; Hayden, N.; Chester, V.; Tromans, S.
  • The prevalence of autism spectrum disorders in adult psychiatric inpatients: a systematic review
    Tromans, S.; Chester, V.; Kiani, R.; Alexander, R.; Brugha, T.
  • Study protocol: an investigation of the prevalence of autism among adults admitted to acute mental health wards: a cross-sectional pilot study
    Tromans, S.; Yao, G.L.; Kiani, R.; Alexander, R.; Al-Uzri, M.; Brugha, T.
  • Cultural variations in behaviours related to ASD in South African children
    Wilford, A.
  • The diagnostic interview for social and communication disorders: background, inter‐rater reliability and clinical use
    Wing, L.; Leekam, S.R.; Libby, S.J.; Gould, J.; Larcombe, M.
  • Prevalence of autism spectrum disorder among US children and adolescents, 2014-2016
    Xu, G.; Strathearn, L.; Liu, B.; Bao, W.
  • Prevalence of autism in a US metropolitan area
    Yeargin-Allsopp, M.; Rice, C.; Karapurkar, T.; Doernberg, N.; Boyle, C.; Murphy, C.
  • Prevalence of autism spectrum disorders and influence of country of measurement and ethnicity
    Zaroff, C.M.; Uhm, S.Y.
  • Disparities in diagnosis and treatment of autism in Latino and Non-Latino white families
    Zuckerman, K.E.; Lindly, O.J.; Reyes, N.M.; Chavez, A.E.; Macias, K.; Smith, K.N.; Reynolds, A.
  • Early screening of autism spectrum disorder: recommendations for practice and research
    Zwaigenbaum, L.; Bauman, M.L.; Fein, D.; Pierce, K.; Buie, T.; Davis, P.A.; Newschaffer, C.; Robins, D.L.; Wetherby, A.; Choueiri, R.; Kasari, C.
  • Epidemiology of autism spectrum disorders in adults in the community in England
    Brugha, T.S.; McManus, S.; Bankart, J.; Scott, F.; Purdon, S.; Smith, J.; Bebbington, P.; Jenkins, R.; Meltzer, H.