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- Publisher
- SAGE
- Copyright
- © 2017 National Psoriasis Foundation.
- ISSN
- 2475-5303
- eISSN
- 2475-5311
- DOI
- 10.1177/247553031700200307
- Publisher site
- See Article on Publisher Site
Abstract
The National Psoriasis Foundation (NPF) is developing an agenda for patient-centered research to help patients and their caregivers make more informed health care decisions by engaging psoriasis patients in prioritizing comparative effectiveness research (CER) topics. The NPF has created a novel patient-centered research platform known as Citizen Pscientist (CP), allowing patients with psoriasis and psoriatic arthritis to register and contribute their health data. The CP Governance Council administered an online 23-question CER survey to the CP community and held a structured meeting on December 3, 2016, with patients and researchers to review CER survey results and discuss patient-centered research priorities. Of the 2,945 patients surveyed, 792 patients responded. Three CER topics were deemed to be of high priority for the research agenda: 1) Treat-to-target therapy for psoriasis, 2) Psoriatic arthritis screening questionnaires for early detection and treatment of psoriatic arthritis, and 3) Comparative effectiveness of home-based phototherapy for psoriasis.
Journal
Journal of Psoriasis and Psoriatic Arthritis – SAGE
Published: Jun 1, 2017