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A Guide to Psychosocial and Spiritual Care at the End of LifeCare for Family Caregivers

A Guide to Psychosocial and Spiritual Care at the End of Life: Care for Family Caregivers [Between 15 and 44 million Americans─approximately one person in every four households─provide long-term, unpaid care for chronically ill or dying relatives. This chapter addresses the plight of those people who care for chronically ill or dying relatives. The chapter begins by reviewing reasons why families have a duty to care for their ill or dying. The chapter then describes typical aspects of family caregiving including care tasks, stressors, potential stress relievers, and impact on caregivers. Next the chapter describes family caregiving with the dementias, the fatal diseases for which the most data on the topic exist. (I believe caregiving with the dementias often resembles caregiving with other fatal diseases such as the cancers and the organ system failures. Many lessons about caregiving with the dementias should apply equally well to those other diseases.) The chapter then discusses interventions aimed at supporting family caregiversCaregiver supportof dying patientsDying patients and family caregivers and closes with suggestions about how health professionals (HPs) in particular can help. To illustrate many of its points, the chapter uses an elderly man who suffers a hip fracture and then requires family care at home for many months. He develops a dementia in the meantime and finally dies after a severely debilitating stroke.] http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png

A Guide to Psychosocial and Spiritual Care at the End of LifeCare for Family Caregivers

Perkins, Henry S.
Springer Journals — Mar 19, 2017
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32 pages

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Publisher
Springer New York
Copyright
© Springer Science+Business Media LLC 2016
ISBN
978-1-4939-6802-2
Pages
261 –293
DOI
10.1007/978-1-4939-6804-6_9
Publisher site
See Chapter on Publisher Site

Abstract

[Between 15 and 44 million Americans─approximately one person in every four households─provide long-term, unpaid care for chronically ill or dying relatives. This chapter addresses the plight of those people who care for chronically ill or dying relatives. The chapter begins by reviewing reasons why families have a duty to care for their ill or dying. The chapter then describes typical aspects of family caregiving including care tasks, stressors, potential stress relievers, and impact on caregivers. Next the chapter describes family caregiving with the dementias, the fatal diseases for which the most data on the topic exist. (I believe caregiving with the dementias often resembles caregiving with other fatal diseases such as the cancers and the organ system failures. Many lessons about caregiving with the dementias should apply equally well to those other diseases.) The chapter then discusses interventions aimed at supporting family caregiversCaregiver supportof dying patientsDying patients and family caregivers and closes with suggestions about how health professionals (HPs) in particular can help. To illustrate many of its points, the chapter uses an elderly man who suffers a hip fracture and then requires family care at home for many months. He develops a dementia in the meantime and finally dies after a severely debilitating stroke.]

Published: Mar 19, 2017

Keywords: Caregivers at the end of life; Family caregivers; Caregiver support; Long-term caregivers; Dying patients and family caregivers

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