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/lp/springer-journals/a-practical-approach-to-the-care-of-adolescents-and-young-adults-with-067WFXlKvP
- Publisher
- Springer International Publishing
- Copyright
- © Springer International Publishing AG 2018
- ISBN
- 978-3-319-66172-8
- Pages
- 211 –238
- DOI
- 10.1007/978-3-319-66173-5_10
- Publisher site
- See Chapter on Publisher Site
Abstract
[This chapter aims to give a voice to adolescents and young adults (AYA) experiencing cancer care in the second decade of the twenty-first century and to present practical advice for healthcare professionals. If we don’t listen to AYAs life stories we will be unable to create an environment of care that meets their needs. Development of the chapter began with conversations with young people through the CLIC SARGENT network (the UK’s leading charity for children and young people with cancer, and their families). This enabled focus groups with the Young People’s Reference Group (YPRG), two hospital based groups, and individual telephone conversations (n = 21 total participants). Additional anonymised interview and survey results were also included from Redkite (Australian cancer charity providing essential support to children and young people with cancer, and the family and support network who care for them). Following several rounds of conversations three main themes emerged. The chapter is structured around these themes exploring first what AYA want to tell us, and then integrating these messages with findings in published literature.]
Published: Aug 29, 2017