Access the full text.
Sign up today, get DeepDyve free for 14 days.
E. Ward, C. DeSantis, A. Robbins, B. Kohler, A. Jemal (2014)Childhood and adolescent cancer statistics, 2014
CA: A Cancer Journal for Clinicians, 64
L. Zeltzer, C. Recklitis, D. Buchbinder, B. Zebrack, J. Casillas, J. Tsao, Q. Lu, K. Krull (2009)Psychological status in childhood cancer survivors: a report from the Childhood Cancer Survivor Study.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 27 14
N. Kadan-Lottick, L. Robison, J. Gurney, J. Neglia, Y. Yasui, R. Hayashi, M. Hudson, M. Greenberg, A. Mertens (2002)Childhood cancer survivors' knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study.
JAMA, 287 14
S Ristovski-Slijepcevic, R Barr, M Bernstein, PC Nathan (2009)A cross-Canada survey of clinical programs for the care of survivors of cancer in childhood and adolescence
Pediatr Child Health, 14
P. Nathan, C. Daugherty, K. Wroblewski, M. Kigin, T. Stewart, F. Hlubocky, E. Grunfeld, Marie Giudice, Leigh-Anne Ward, J. Galliher, K. Oeffinger, T. Henderson (2013)Family physician preferences and knowledge gaps regarding the care of adolescent and young adult survivors of childhood cancer
Journal of Cancer Survivorship, 7
L. Schwartzman (2002)Relational Autonomy: Feminist Perspectives on Autonomy, Agency, and the Social Self
Teaching Philosophy, 25
(2012)Qualitative inquiry and research design: choosing among five approaches
A. Howard, Jason Bibiana, K. Smillie, K. Goddard, S. Pritchard, R. Olson, A. Kazanjian (2013)Trajectories of social isolation in adult survivors of childhood cancer
Journal of Cancer Survivorship, 8
C. Recklitis, L. Diller, Xiaochun Li, J. Najita, L. Robison, L. Zeltzer (2010)Suicide ideation in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 28 4
A. Norberg, S. Steneby (2009)Experiences of parents of children surviving brain tumour: a happy ending and a rough beginning.
European journal of cancer care, 18 4
K. Oeffinger, A. Mertens, C. Sklar, T. Kawashima, M. Hudson, A. Meadows, D. Friedman, N. Marina, W. Hobbie, N. Kadan-Lottick, C. Schwartz, W. Leisenring, L. Robison (2006)Chronic health conditions in adult survivors of childhood cancer.
The New England journal of medicine, 355 15
Susan Hayden (2010)Book Review: Family Nursing as Relational Inquiry: Developing Health-Promoting Practice
Nursing Science Quarterly, 23
M. Hudson, V. Tyc, D. Srivastava, J. Gattuso, A. Quargnenti, D. Crom, P. Hinds (2002)Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors: the protect study.
Medical and pediatric oncology, 39 1
I. Ressler, J. Cash, D. Mcneill, S. Joy, P. Rosoff (2003)Continued Parental Attendance at a Clinic for Adult Survivors of Childhood Cancer
Journal of Pediatric Hematology/Oncology, 25
A. Mertens, K. Cotter, Barbara Foster, B. Zebrack, M. Hudson, D. Eshelman, Lauren Loftis, M. Sozio, K. Oeffinger (2004)Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts.
Health policy, 69 2
(1995)influence the information patients want and need about their disease
Pamela Williams-Piehota, Judith Pizarro, T. Schneider, L. Mowad, P. Salovey (2005)Matching health messages to monitor-blunter coping styles to motivate screening mammography.
Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 24 1
PC Nathan, ML Greenberg, KK Ness, MM Hudson, AC Mertens, MC Mahoney (2008)Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study
J Clin Oncol, 26
Christine Berg, R. Hayashi (2013)Participation and Self-Management Strategies of Young Adult Childhood Cancer Survivors
OTJR: Occupation, Participation and Health, 33
K. Oeffinger, M. Hudson (2004)Long‐term Complications Following Childhood and Adolescent Cancer: Foundations for Providing Risk‐based Health Care for Survivors
CA: A Cancer Journal for Clinicians, 54
J. Ford, J. Chou, C. Sklar (2013)Attendance at a survivorship clinic: impact on knowledge and psychosocial adjustment
Journal of Cancer Survivorship, 7
N. Langeveld, H. Stam, M. Grootenhuis, B. Last (2002)Quality of life in young adult survivors of childhood cancer
Supportive Care in Cancer, 10
A. Cox, S. Faithfull (2013)‘They’re survivors physically but we want them to survive mentally as well’: health care professionals’ views on providing potential late effect information
Supportive Care in Cancer, 21
J. Perlmutter (2006)From Cancer Patient to Cancer Survivor: Lost in Translation
S. Sherwin (1998)The politics of women's health : exploring agency and autonomy
KC Oeffinger, MM Hudson (2004)Long-term complications following childhood and adolescent cancer: foundations for providing risk-based health care for survivors
CA-Cancer J Clin, 54
Diana Prouty, P. Ward-smith, C. Hutto (2006)The Lived Experience of Adult Survivors of Childhood Cancer
Journal of Pediatric Oncology Nursing, 23
M. Hudson, K. Ness, J. Gurney, D. Mulrooney, W. Chemaitilly, K. Krull, D. Green, G. Armstrong, K. Nottage, Kendra Jones, C. Sklar, D. Srivastava, L. Robison (2013)Clinical ascertainment of health outcomes among adults treated for childhood cancer.
JAMA, 309 22
R. Woodgate (2006)Life is never the same: childhood cancer narratives.
European journal of cancer care, 15 1
Eugene Suh, C. Daugherty, K. Wroblewski, Hannah Lee, M. Kigin, K. Rasinski, J. Ford, E. Tonorezos, P. Nathan, K. Oeffinger, T. Henderson (2014)General Internists Preferences and Knowledge About the Care of Adult Survivors of Childhood Cancer
Annals of Internal Medicine, 160
R. McCorkle, Elizabeth Ercolano, M. Lazenby, D. Schulman-Green, L. Schilling, K. Lorig, E. Wagner (2011)Self‐management: Enabling and empowering patients living with cancer as a chronic illness
CA: A Cancer Journal for Clinicians, 61
LK Zeltzer, Q Lu, W Leisenring, JC Tsao, C Recklitis, G Armstrong (2008)Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study
Cancer Epidemiol Biomarl, 17
L. Zeltzer, Q. Lu, W. Leisenring, J. Tsao, C. Recklitis, G. Armstrong, A. Mertens, L. Robison, K. Ness (2008)Psychosocial Outcomes and Health-Related Quality of Life in Adult Childhood Cancer Survivors: A Report from the Childhood Cancer Survivor Study
Cancer Epidemiology Biomarkers & Prevention, 17
W. Landier, W. Wallace, M. Hudson (2006)Long‐term follow‐up of pediatric cancer survivors: Education, surveillance, and screening
Pediatric Blood & Cancer, 46
Andrea Mitchell (2009)Stages of Change
Journal of Addictions Nursing, 16
A. Latimer, Nicole Katulak, L. Mowad, P. Salovey (2005)Motivating Cancer Prevention and Early Detection Behaviors using Psychologically Tailored Messages
Journal of Health Communication, 10
K. Glanz, B. Rimer, K. Viswanath (1991)Health behavior and health education : theory, research, and practice
DL Friedman, J Whitton, W Leisenring, AC Mertens, S Hammond, M Stovall (2010)Subsequent neoplasms in 5-year survivors of childhood cancer: the Childhood Cancer Survivor Study
J Natl Cancer Inst, 102
L. Kremer, R. Mulder, K. Oeffinger, S. Bhatia, W. Landier, G. Levitt, L. Constine, W. Wallace, H. Caron, S. Armenian, R. Skinner, M. Hudson (2013)A worldwide collaboration to harmonize guidelines for the long‐term follow‐up of childhood and young adult cancer survivors: A report from the international late effects of Childhood Cancer Guideline Harmonization Group
Pediatric Blood & Cancer, 60
(2016)J Cancer Surviv
R. Arceci (2009)Medical Care in Long-Term Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study
Yearbook of Oncology, 2009
S. Essig, R. Skinner, N. Weid, C. Kuehni, G. Michel (2012)Follow-Up Programs for Childhood Cancer Survivors in Europe: A Questionnaire Survey
PLoS ONE, 7
K. Doshi, A. Kazak, Branlyn DeRosa, Lisa Schwartz, W. Hobbie, J. Ginsberg, R. Ittenbach (2011)Measuring health-related beliefs of mothers of adolescent and young adult childhood cancer survivors.
Families, systems & health : the journal of collaborative family healthcare, 29 1
L. Patterson (2008)Narrative Methods for the Human Sciences
Gender in Management: An International Journal, 23
T. Henderson, F. Hlubocky, K. Wroblewski, L. Diller, C. Daugherty (2010)Physician preferences and knowledge gaps regarding the care of childhood cancer survivors: a mailed survey of pediatric oncologists.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 28 5
V. Jairam, K. Roberts, James Yu (2013)Historical trends in the use of radiation therapy for pediatric cancers: 1973-2008.
International journal of radiation oncology, biology, physics, 85 3
SM Miller (1995)Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease
M. Tsonis, J. McDougall, A. Mandich, J. Irwin (2012)Interrelated Processes Toward Quality of Life in Survivors of Childhood Cancer: A Grounded Theory
The Qualitative Report, 17
S. Drew (2007)`Having cancer changed my life, and changed my life forever': survival, illness legacy and service provision following cancer in childhood
Chronic Illness, 3
K. Oeffinger, M. McCabe (2006)Models for delivering survivorship care.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 24 32
G. Armstrong, T. Kawashima, Wendy Leisenring, K. Stratton, M. Stovall, M. Hudson, C. Sklar, L. Robison, K. Oeffinger (2014)Aging and risk of severe, disabling, life-threatening, and fatal events in the childhood cancer survivor study.
Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 32 12
E. Firth, N. Davies, R. Skinner (2013)Views of Childhood Cancer Survivors and Their Families on the Provision and Format of a Treatment Summary
Journal of Pediatric Hematology/Oncology, 35
Nickie Charles (2000)The Politics of Women’s Health: Exploring Agency and Autonomy
Social Science & Medicine, 50
E. Hovén, B. Lannering, G. Gustafsson, K. Boman (2013)Persistent impact of illness on families of adult survivors of childhood central nervous system tumors: a population‐based cohort study
AC Mertens, Q Liu, JP Neglia, K Wasilewski, W Leisenring, GT Armstrong (2008)Cause-specific late mortality among 5-year survivors of childhood cancer: the Childhood Cancer Survivor Study
J Natl Cancer Inst, 100
S. Miller (1987)Monitoring and blunting: validation of a questionnaire to assess styles of information seeking under threat.
Journal of personality and social psychology, 52 2
S. Ristovski-Slijepcevic, R. Barr, M. Bernstein, P. Nathan (2009)A cross-Canada survey of clinical programs for the care of survivors of cancer in childhood and adolescence.
Paediatrics & child health, 14 6
C. Parry (2003)Embracing Uncertainty: An Exploration of the Experiences of Childhood Cancer Survivors
Qualitative Health Research, 13
M. Cantrell, Teresa Conte (2009)Between Being Cured and Being Healed: The Paradox of Childhood Cancer Survivorship
Qualitative Health Research, 19
G. Guilcher, C. Fitzgerald, S. Pritchard (2009)A questionnaire based review of long‐term follow‐up programs for survivors of childhood cancer in Canada
Pediatric Blood & Cancer, 52
K. Boydell, E. Stasiulis, M. Greenberg, C. Greenberg, B. Spiegler (2008)I'll Show Them: The Social Construction of (In)Competence in Survivors of Childhood Brain Tumors
Journal of Pediatric Oncology Nursing, 25
P. Roussi, Suzanne Miller (2014)Monitoring style of coping with cancer related threats: a review of the literature
Journal of Behavioral Medicine, 37
Michelle Condren, L. Lubsch, T. Vats (2005)Long-term follow-up of survivors of childhood cancer
The Indian Journal of Pediatrics, 72
E Suh, CK Daugherty, K Wroblewski, H Lee, ML Kigin, KA Rasinski (2014)General internists? preferences and knowledge about the care of adult survivors of childhood cancer: a cross-sectional survey
Ann Intern Med, 160
Dr. Gilbar, O. Gilbar (2009)The Medical Decision-Making Process and the Family: The Case of Breast Cancer Patients and Their Husbands
Labor: Demographics & Economics of the Family eJournal
A. Mertens, Qi Liu, J. Neglia, K. Wasilewski, W. Leisenring, G. Armstrong, L. Robison, Y. Yasui (2008)Cause-specific late mortality among 5-year survivors of childhood cancer: the Childhood Cancer Survivor Study.
Journal of the National Cancer Institute, 100 19
Suzanne Miller (1995)Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease. Implications for cancer screening and management
Canadian Cancer Statistics special topic: cancer in adolescents and young adults (ages 15-29 years)
K. Oeffinger, A. Mertens, M. Hudson, J. Gurney, J. Casillas, Hegang Chen, J. Whitton, M. Yeazel, Y. Yasui, L. Robison (2004)Health Care of Young Adult Survivors of Childhood Cancer: A Report from the Childhood Cancer Survivor Study
The Annals of Family Medicine, 2
M. Hudson, A. Mertens, Y. Yasui, W. Hobbie, Hegang Chen, J. Gurney, M. Yeazel, C. Recklitis, N. Marina, L. Robison, K. Oeffinger (2003)Health status of adult long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.
JAMA, 290 12
K. Oeffinger, W. Wallace (2006)Barriers to follow‐up care of survivors in the United States and the United Kingdom
Pediatric Blood & Cancer, 46
R McCorkle, E Ercolano, M Lazenby, D Schulman‐Green, LS Schilling, K Lorig (2011)Self-management: enabling and empowering patients living with cancer as a chronic illness
CA-Cancer J Clin, 61
Carolyn Rabin, Norah Simpson, K. Morrow, B. Pinto (2013)Intervention Format and Delivery Preferences Among Young Adult Cancer Survivors
International Journal of Behavioral Medicine, 20
A. Fagerlin, B. Zikmund‐Fisher, P. Ubel (2011)Helping patients decide: ten steps to better risk communication.
Journal of the National Cancer Institute, 103 19
J. Chambers-evans (2007)Toward a Moral Horizon: Nursing Ethics for Leadership and Practice
M. Hewitt, S. Weiner, J. Simone (2003)Childhood cancer survivorship : improving care and quality of life
E Ward, C DeSantis, A Robbins, B Kohler, A Jemal (2014)Childhood and adolescent cancer statistics, 2014
CA-Cancer J Clin, 64
JO Prochaska, JC Norcross (2001)Stages of change
Psychother Theor Res, 38
B. Zebrack, R. Block, B. Hayes-Lattin, Leanne Embry, Christine Aguilar, K. Meeske, Yun Li, Melissa Butler, Steve Cole (2013)Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients
S. Edwards (2005)Toward a Moral Horizon, Nursing Ethics for Leadership and Practice
Nursing Philosophy, 6
Pamela Williams-Piehota, T. Schneider, Judith Pizarro, L. Mowad, P. Salovey (2003)Matching Health Messages to Information-Processing Styles: Need for Cognition and Mammography Utilization
Health Communication, 15
(2012)Health Council of Canada self-management support for Canadians with chronic health conditions: a focus for primary health care
A Fagerlin, BJ Zikmund-Fisher, PA Ubel (2011)Helping patients decide: ten steps to better risk communication
J Natl Cancer Inst, 103
Iqra Syed, A. Klassen, R. Barr, Rebecca Wang, D. Dix, M. Nelson, Z. Rosenberg-Yunger, P. Nathan (2016)Factors associated with childhood cancer survivors’ knowledge about their diagnosis, treatment, and risk for late effects
Journal of Cancer Survivorship, 10
KC Oeffinger (2006)Wallace WHB Barriers to follow?up care of survivors in the United States and the United Kingdom
Pediatr Blood Cancer, 46
P Williams-Piehota, TR Schneider, J Pizarro, L Mowad, P Salovey (2003)Matching health messages to information-processing styles: need for cognition and mammography utilization
J Health Commun, 15
D. Friedman, J. Whitton, W. Leisenring, A. Mertens, S. Hammond, M. Stovall, S. Donaldson, A. Meadows, L. Robison, J. Neglia (2010)Subsequent neoplasms in 5-year survivors of childhood cancer: the Childhood Cancer Survivor Study.
Journal of the National Cancer Institute, 102 14
S. Sohl, A. Moyer (2007)Tailored interventions to promote mammography screening: a meta-analytic review.
Preventive medicine, 45 4
R Gilbar, O Gilbar (2009)The medical decision-making process and the family: the case of breast cancer patients and their husbands
J Cancer Surviv (2016) 10:711–725 DOI 10.1007/s11764-016-0517-8 Adult childhood cancer survivors’ narratives of managing their health: the unexpected and the unresolved 1 2 3 4 A. Fuchsia Howard & Karen Goddard & Jason Tan de Bibiana & Sheila Pritchard & 5 6 Robert Olson & Arminee Kazanjian Received: 29 September 2015 /Accepted: 18 January 2016 /Published online: 30 January 2016 The Author(s) 2016. This article is published with open access at Springerlink.com Abstract my follow-up care, (3) being proactive about my health, (4) Purpose Currently, 80 % of children diagnosed with cancer stumbling from one problem to the next, and (5) struggling to will be cured. However, many of these survivors go on to find my way. develop long-term health problems or late effects related to Conclusions Variation exists in the ways in which childhood their previous cancer and therapy and require varying degrees cancer survivors frame their health, their perceived signifi- of lifelong follow-up care. The purpose of this study was to cance of health challenges, strategies used to manage health, identify the different ways that adult survivors of childhood interactions with healthcare professionals and the health sys- cancer manage their medical and psychological challenges. tem, and parental
Journal of Cancer Survivorship: Research and Practice – Springer Journals
Published: Jan 30, 2016
Access the full text.
Sign up today, get DeepDyve free for 14 days.