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Ethics in the Era of Big Data

Ethics in the Era of Big Data Asian Bioethics Review (2019) 11:169–171 https://doi.org/10.1007/s41649-019-00092-4 EDITORIAL NOTES G. Owen Schaefer Published online: 18 June 2019 National University of Singapore and Springer Nature Singapore Pte Ltd. 2019 While health researchers have long relied on data to develop insights and innovations, it is generally recognised that in recent years, there has been a substantial shift—we no longer talk about just data, but big data. The big data era is characterised not only by the very large quantity of data that is being generated but also by the depth of detail the data contain and the ability of researchers to rapidly transmit, link and analyse the data. In this context, perennial ethical concerns such as obtaining valid informed consent and respecting privacy take on a new character, and it is not clear if existing approaches to these ethical issues are still fit for purpose. Yet if new (or at least revised) approaches are needed, what should they look like? How should they be formulated, and by whom? The Science, Health and Policy-relevant Ethics in Singapore (SHAPES) initiative is currently engaged in responding to such challenges. SHAPES, funded by Singapore’s National Medical Research Council and housed by the Centre for Biomedical Ethics, http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Asian Bioethics Review Springer Journals

Ethics in the Era of Big Data

Asian Bioethics Review , Volume 11 (2) – Jun 18, 2019

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Publisher
Springer Journals
Copyright
Copyright © 2019 by National University of Singapore and Springer Nature Singapore Pte Ltd.
Subject
Philosophy; Bioethics; Ethics; Medical Law; Public Health; Biomedicine, general; Health Administration
ISSN
1793-8759
eISSN
1793-9453
DOI
10.1007/s41649-019-00092-4
Publisher site
See Article on Publisher Site

Abstract

Asian Bioethics Review (2019) 11:169–171 https://doi.org/10.1007/s41649-019-00092-4 EDITORIAL NOTES G. Owen Schaefer Published online: 18 June 2019 National University of Singapore and Springer Nature Singapore Pte Ltd. 2019 While health researchers have long relied on data to develop insights and innovations, it is generally recognised that in recent years, there has been a substantial shift—we no longer talk about just data, but big data. The big data era is characterised not only by the very large quantity of data that is being generated but also by the depth of detail the data contain and the ability of researchers to rapidly transmit, link and analyse the data. In this context, perennial ethical concerns such as obtaining valid informed consent and respecting privacy take on a new character, and it is not clear if existing approaches to these ethical issues are still fit for purpose. Yet if new (or at least revised) approaches are needed, what should they look like? How should they be formulated, and by whom? The Science, Health and Policy-relevant Ethics in Singapore (SHAPES) initiative is currently engaged in responding to such challenges. SHAPES, funded by Singapore’s National Medical Research Council and housed by the Centre for Biomedical Ethics,

Journal

Asian Bioethics ReviewSpringer Journals

Published: Jun 18, 2019

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