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CHALLENGING MEDICAL-LEGAL NORMS: THE ROLE OF AUTONOMY, CONFIDENTIALITY, AND PRIVACY IN PROTECTING INDIVIDUAL AND FAMILIAL GROUP RIGHTS IN GENETIC INFORMATION

CHALLENGING MEDICAL-LEGAL NORMS: THE ROLE OF AUTONOMY, CONFIDENTIALITY, AND PRIVACY IN PROTECTING... The Journal of Legal Medicine, 22:1 54 ° C Copyright 2001 Taylor & Francis 0194-7648/01 $12.00 + .00 CHALLENGING MEDICAL-LEGAL NORMS THE ROLE OF AUTONOMY, CONFIDENTIALITY, AND PRIVACY IN PROTECTING INDIVIDUAL AND FAMILIAL GROUP RIGHTS IN GENETIC INFORMATION Graeme T. Laurie, LL.B., Ph.D. INTRODUCTION Much ink has been spilled discussing the rami cations of genetic advances for individuals, communities, and society at large. A central concern has been the problem of regulating access to, and control of, genetic information that has been produced as a result of rapid progress in the elds of genetic research and genetic testing. To date, discussion has rightly focused on the uses to which genetic test results should be put, and, indeed, on the logically prior question of whether genetic information should be sought at all in certain circumstances. Debate has, however, tended to polarize the issues under scrutiny, setting the individual against the state or other interested parties, such as insurers or employers. Moreover, from the perspective of the individual, the interests that have been identi ed as being at stake have centered on the autonomy of persons and the “right” that they have to control personal genetic information. While these are http://www.deepdyve.com/assets/images/DeepDyve-Logo-lg.png Journal of Legal Medicine Taylor & Francis

CHALLENGING MEDICAL-LEGAL NORMS: THE ROLE OF AUTONOMY, CONFIDENTIALITY, AND PRIVACY IN PROTECTING INDIVIDUAL AND FAMILIAL GROUP RIGHTS IN GENETIC INFORMATION

Journal of Legal Medicine , Volume 22 (1): 54 – Mar 1, 2001
54 pages

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References (101)

Publisher
Taylor & Francis
Copyright
Copyright Taylor & Francis Group, LLC
ISSN
1521-057x
eISSN
0194-7648
DOI
10.1080/019476401750171115
pmid
11330121
Publisher site
See Article on Publisher Site

Abstract

The Journal of Legal Medicine, 22:1 54 ° C Copyright 2001 Taylor & Francis 0194-7648/01 $12.00 + .00 CHALLENGING MEDICAL-LEGAL NORMS THE ROLE OF AUTONOMY, CONFIDENTIALITY, AND PRIVACY IN PROTECTING INDIVIDUAL AND FAMILIAL GROUP RIGHTS IN GENETIC INFORMATION Graeme T. Laurie, LL.B., Ph.D. INTRODUCTION Much ink has been spilled discussing the rami cations of genetic advances for individuals, communities, and society at large. A central concern has been the problem of regulating access to, and control of, genetic information that has been produced as a result of rapid progress in the elds of genetic research and genetic testing. To date, discussion has rightly focused on the uses to which genetic test results should be put, and, indeed, on the logically prior question of whether genetic information should be sought at all in certain circumstances. Debate has, however, tended to polarize the issues under scrutiny, setting the individual against the state or other interested parties, such as insurers or employers. Moreover, from the perspective of the individual, the interests that have been identi ed as being at stake have centered on the autonomy of persons and the “right” that they have to control personal genetic information. While these are

Journal

Journal of Legal MedicineTaylor & Francis

Published: Mar 1, 2001

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